Strength in Every Breath. Hope in Every Step
Supporting, Educating, and Empowering the Myasthenia Gravis Community.
We Donate
It is not the amount that matters but the meaning behind your donation. together we can bring hope & save a life psalm 23:4 No one fights alone
Monthly Gift
We open donations for Myasthenia Gravis Fighters. All donations will go to bring awareness & to to our EMERGENCY for medications and treatment.
We Educate
Myasthenia Gravis is a chronic autoimmune neuromuscular disease. The immune system mistakenly attacks the communication points between the muscles and nerves, resulting in mild to severe skeletal muscles weakness.
Gift Catalog
We accept any sort of gifts or aid to help with the awareness and education when it comes to Myasthenia Gravis
About Us
We realized that while MG weakens muscles, it doesn't have to weaken hope.
Today, we are a national network of patients, families, medical experts, and advocates united by a single goal: to improve the lives of everyone affected by this challenging condition.
Promote Access to Healthcare For Myasthenia Gravis Fighters
Direct patient and family assistance, helplines, support groups.
Let us work together to make a difference
Raising awareness and fighting for better care and research funding
Our Stories
In our own words
Founded on the 28th October 2023 by Corachia Ockhuizen who was diagnosed with Myasthenia Gravis in 2016. A very complicated journey awaited her, Over 50 hospital admissions , 9 visits to the ICU over a period of 7 years. Unable to work, she became dependent on family to take care of her. After surviving , she realized how precious life is and wanted to help those going through the same experience. Myasthenia Gravis is an invisible disease making it very difficult sometime for friends and family to understand. Patients are left with a lot of unanswered questions, feeling isolated and often depressed. This is one of the aims of the Foundation, to bring clarity, understanding and a sense of belonging.
29 +
Aged Female
60 +
Aged Male
- Saving lives one step at a time
- Focused on fundraising projects
- Our best projects which will inspire you!
Testimonials
What People Say About
Myasthenia Gravis
Ester Lileka
Namibian
I’ve since joined a community of people like me, living with rare diseases. Although we might have the same conditions, we are going through different things. But all in all, we are there to support one another — because at the end of the day, we’re swimming in the same water.
Pamela Kashamba
Namibian
I was diagnosed with Myasthenia Gravis in January 2020 by Dr. Kumire, marking the beginning of a challenging journey with this autoimmune disorder. My independence shifted as I had to rely on others due to severe fatigue, muscle weakness, vision issues, and difficulty breathing. The first year was particularly tough as I adapted to medication and to my condition.
Amanda Rust
Namibian
I have never felt so knocked down in my life. Even though I’ve had to deal with a few punches in life, facing this new and uncertain future hits differently. I protect my lonely feelings by reminding myself that I am not alone in this journey. I believe we can be part of a new generation of discoveries in the medical field — discovering new ways or medications to protect or share ourselves through the thorns of life.
"Alone I can do so little, but together, we can do so much."
Success Story
This journey has been one that reminds me
" One day, my doctor applauded my circle. He noticed that I have the strongest support someone is always there to pick me up, drop me off, or simply keep me company while I wait for medical assistance. Honestly, I believe that has continuously given me a reason to keep fighting" - Ester Lileka
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1 in 5,000 people live with Myasthenia Gravis (MG)
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A heartfelt thank you to our sponsors
