About us
Our Story
⚡ Founded 28 October 2023
Founded by Corachia Ockhuizen, diagnosed with Myasthenia Gravis in 2016. A very complicated journey awaited her: over 50 hospital admissions, 9 visits to the ICU over 7 years. Unable to work, she became dependent on family to take care of her. After surviving, she realized how precious life is and wanted to help those going through the same experience.
Myasthenia Gravis is an invisible disease, making it very difficult sometimes for friends and family to understand. Patients are left with many unanswered questions, feeling isolated and often depressed. This is one of the aims of the Foundation: to bring clarity, understanding and a sense of belonging.
The Myasthenia Gravis Foundation works hand in hand with The Namibian Alliance for Rare Diseases. Globally, 150–200 people in 1 million are diagnosed with Myasthenia Gravis, making it a relatively rare disease. Females often diagnosed at 29 and males above 60 — but anyone can get it at any age.
“MG might weaken muscles but it doesn’t have to weaken hope. We stand united as a foundation to bring hope, safety and love.”
🎯 Our Mission Statement
“To provide comprehensive support, promote groundbreaking research, and empower the Myasthenia Gravis community through education and advocacy.”
👁️ Our Vision
“A world where every person with MG receives timely diagnosis, effective treatment, and lives with dignity and strength.”
Our Core Values
- Compassion Patient-centered care, empathy, and kindness at every step of the journey.
- Integrity Honest, transparent, and ethical in all we do for the MG community.
- Collaboration Working together with patients, families, researchers, and global partners.
- Empowerment Giving patients voice, knowledge, and tools to live fully with MG.
- Innovation Advancing research, treatment access, and support through new ideas.
Symptoms
🏥 Treatments
- 💊 Acetylcholinesterase Inhibitors
- 🔬 Immunosuppressants
- ⚕️ Thymectomy Surgery
- 💉 Plasma Exchange / IVIG
- 🧬 Novel & Targeted therapies such as Rituximab
✨ Comprehensive Care ✨